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3: Good practices to be adopted
Before and after images.
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The current practice for ALPHA data flow is shown.
This rolls in the data consolidation, QC checks and many other aspects of the data with the ultimate analyses. These analyses provide the rationale for the data production as well as the means of production, making the whole process dependent on the end product. The role of the data hub is to recognize the value of the data in itself, and to ensure that value is located in Africa to leverage resources to further build capacity for data collection, management and analyses.
The proposed value of the data hub is shown:
What extra value might be obtained from the proposed ALPHA ++ data hub?
- Recommendations to the HDSS and expert support for the data collection which will be especially useful to the smaller HDSS
- Mechanisms for extraction of data and documenting the meta data for the extracted data
- Mechanisms for linking to clinical records and developing the new databases required for clinical data
- Variable models / information model - variable properties together with the variables. Ensuring the ALPHA ++ data utilize the latest standards and the best practice for information models.
- Access and reuse agreements for the shared data
- More specific than GO FAIR but would benefit from such activities and promotion of good practices
- Adopt information model such as Open EHR
- What is the model that the different centres use to refresh their data?
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| Activity | Human Resource Effort |
|---|---|
| Server, repository management, access controls | 1FTE |
| Developing new Pentaho services | 1FTE |
| Managing existing Pentaho Service | 1FTE |
| Metadata management and QA/QC | 1FTE |
| Training, advocacy and outreach | 2FTE |
| Total | 5FTE6FTE |
Income Streams and Business Model
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