Sensitive Data/Micro- and Macro-Data

Sensitive Data working documents:

Group 2 Sensitive Data Google Document

McEachern, et al (2022), CADRE Conceptual Framework. CADRE Five Safes Framework - Conceptualisation and Operationalisation of the Five Safes Framework

(Overview presentation of the CADRE framework - PPT)

George Alter, Alejandra Gonzalez-Beltran, Lucila Ohno-Machado, Philippe Rocca-Serra, The Data Tags Suite (DATS) model for discovering data access and use requirements, GigaScience, Volume 9, Issue 2, February 2020, giz165, https://doi.org/10.1093/gigascience/giz165

Haas, M.A., Teare, H., Prictor, M. et al. ‘CTRL’: an online, Dynamic Consent and participant engagement platform working towards solving the complexities of consent in genomic research. Eur J Hum Genet 29, 687–698 (2021). https://doi.org/10.1038/s41431-020-00782-w (Australian Genomics Dynamic Consent paper.) 

BACKGROUND READING:

From Lauren Maxwell:

• EOSC-Life Report on data standards for observational and interventional studies, and interoperability between healthcare and research data

• FAIR data for coordinated COVID-19 response

• FAIR registries and platforms for COVID-19 response

• Workplan from CODATA GOSC (Global Open Science Cloud) Health Data Case Study

From Arofan Gregory

• https://codata.org/initiatives/decadal-programme2/infectious-diseases/inspire-data-hub-technical-results-of-phase-1/

NOTE: This is the East African population data hub, not the EU Directive on geospatial/environmental data or any of the other European funded INSPIRE projects.

From Agnes Kiragga

• Here are some slides on INSPIRE.

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From Jay Greenfield for 14:30 meeting on Wednesday:

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